The emergency
room doctor called in an Ear Nose & Throat specialist, who
declared the lump a rare, congenital cyst; she stopped the pain
and swelling with antibiotics. Two senior physicians later confirmed
this diagnosis, recommending surgery to remove the cyst. Corinne
now out of pain wanted to delay surgery, but I insisted
we be assured this was not cancer. After a painful Fine Needle
Aspiration, the pathology report said, "There is no malignancy."
Six months
later, the lump had grown prodigiously to the size of Corinne's
fist but the ENT specialists refused to return our concerned
calls. We learned the truth from a new group of doctors who performed
a surgical biopsy on Corinne's neck. The lump was Diffuse Small
B-cell Lymphoma, spreading at an intermediate rate.
In my two
experiences with cancer, we have replaced lots of doctors: sole
practitioners and clinics, those who were too arrogant or too
ignorant, too busy or too distracted, respected doctors in respected
cancer centers. Some of them, we should have replaced, but didn't
and regretted it. The person with cancer is almost always afraid
to do this, afraid to anger those she depends on for her life,
so the Caregiver must play an active role here: sometimes even
aggressive or abrasive. In the end though, it is the patient's
decision what to do with her doctors.